Our Mission
Advancing pediatric respiratory health in Latin America, we raise awareness and provide support for rare lung diseases like Primary Ciliary Dyskinesia (PCD). Committed to early diagnosis, we strive to improve lives across borders.
Impact
Outreach Program
This program was launched with the recognition that Primary Ciliary Dyskinesia (PCD) is frequently underdiagnosed in Latin America due to limited awareness, scarce diagnostic resources, and the absence of established guidelines. Our initiative began with a pilot project across various Latin American countries, and it has now found full implementation exclusively in Mexico.
Our approach is patient-centric, involving engagement with local pulmonologists in Latin America. We deliver informative presentations at national conferences in their respective countries, sharing insights and resources to enhance PCD awareness and diagnosis. The PCD team provides direct contact information to local pulmonologists, fostering collaboration and resource accessibility. To further our commitment to comprehensive care, we offer an opportunity for Latin-American physicians to undergo specialized PCD training at our Houston center. In the past year alone, our center has received 120 referrals for PCD and is actively treating 65 patients diagnosed with the condition.
In Mexico, we provide hands-on training for local pulmonologists, equipping them with essential skills such as obtaining nasal ciliary biopsies, measuring nNO, utilizing HSVMA, and implementing airway clearance techniques. Additionally, we extend our support by assisting local physicians during telemedicine visits for their PCD patients, ensuring that patient care remains at the forefront of our mission
Referrals
The graphic illustrating "Patients Referred from Different Regions of Mexico" serves as a visual representation of how broad our outreach program has been able to impact across Mexico. It highlights the geographic diversity and widespread reach of the program, showcasing that patients are coming from various regions across the country.
By visualizing the distribution of patient referrals, the graphic emphasizes the program's ability to extend its services to a wide and diverse population. It conveys that the impact is not confined to a specific locality but spans multiple regions, indicating a comprehensive and inclusive approach to healthcare outreach. . Our program, serves as an enhanced medical home, provides world-class care for vulnerable children. Furthermore, the program has pioneered different models of healthcare delivery, including establishing a multidisciplinary clinic for children with congenital diaphragmatic hernia, pulmonary hypertension, and Primary Ciliary Dyskinesia (PCD).
Pending . . .
Information coming soon